FENDMEX (Fundacion de Enfermedades Neurodegenerativas de Mexico)

FENDMEX is a Mexican non-profit foundation that supports people and families affected by neurodegenerative disease, with Creutzfeldt-Jakob disease as one of four named conditions alongside Alzheimer, Parkinson and Huntington disease. The CJDISA directory describes it as set up in 2021 mainly for prion and Alzheimer families, and as a full member of the CJD International Support Alliance since 2022. Its prion role is real but modest on the evidence found: a Spanish-language CJD information page that treats CJD as a prion disease, a support email and registration form, and a list of self-declared collaborators among international surveillance centres and CJD charities. No independent coverage was found. Information only, not medical advice.

Key facts

  • FENDMEX describes itself as a non-profit serving people with neurodegenerative disease in Mexico and Latin America, covering CJD, Alzheimer, Parkinson and Huntington disease.
  • Services listed are medical and psychological support, support for research projects, links to clinics and specialists, and events; the team includes legal advisory and social development roles.
  • The medical council is directed by a research professor at the University of Guadalajara who coordinates its biosciences doctorate.
  • Its stated mission is family and social wellbeing of patients through guidance, diagnosis, treatment and research, with alliances with experts, pharmaceutical firms, universities and research centres.
  • The CJDISA directory says FENDMEX was established in 2021 as a non-profit and supports families dealing with neurodegeneration, mainly prions and Alzheimer.
  • CJDISA states FENDMEX officially became a member organisation in 2022 and meets all criteria for full membership; this verifies the membership from the alliance side.
  • Its CJD page classes CJD as a prion disease, covers sporadic, genetic, iatrogenic and variant forms plus GSS, fatal familial insomnia and kuru, and gives survival and diagnosis information for families.
  • The same page claims about 110 new CJD cases a year in Mexico, derived from roughly one per million; this is the organisation's own estimate and is unchecked.
  • The page directs readers to CJD support groups in the US, Australia, the UK, Japan and Italy, and offers a support email and a registration form.
  • Its collaborators page names the US National Prion Disease Pathology Surveillance Center, CDC, UCSF Memory and Aging Center, CJD Foundation, the UK National CJD Surveillance Unit, a German TSE reference centre, EUROCJD/NEUROCJD, the Australian CJD Support Group Network and AIEnP of Italy. These are self-declared, with no agreements or dates.
  • The collaborators page also lists a Mexican prion surveillance centre, which was not verified elsewhere.

Timeline

  1. 2021Foundation established as a non-profit, per the CJDISA directory.
  2. 2022Becomes an official member organisation of CJDISA.
  3. 2026Own website pages read for this entry (CJD, about, collaborators).

Last checked 1 November 2026

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