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• Adriano AguzziProfessor at the University of Zurich who leads, with Davide Caredio, a 2024 CJD Foundation grant on GPNMB and is an author of the 2026 Nature Communi
• Alison GreenAlison Green worked at the National CJD Research and Surveillance Unit (NCJDRSU) at the University of Edinburgh and is the named principal investigato
• Alyssa BlockAlyssa Block is an early career prion researcher in the Telling laboratory at the Prion Research Center, Colorado State University.
• Amanda WoermanAmanda L. Woerman is an associate professor in the Department of Microbiology, Immunology, and Pathology at Colorado State University and a faculty me
• Anastasia KhvorovaAnastasia Khvorova is a professor of RNA therapeutics at UMass Chan Medical School and the originator of the divalent siRNA scaffold that underlies th
• Andrew G. HughsonAndrew G. Hughson is a laboratory scientist in Byron Caughey's TSE/Prion Biochemistry Section at NIAID Rocky Mountain Laboratories (RML) in Hamilton,
• Anita MahadevanAnita Mahadevan is Professor of Neuropathology at NIMHANS, Bengaluru, a post listed since December 2012.
• Anna LadoganaAnna Ladogana is a researcher in the Department of Neuroscience at the Istituto Superiore di Sanita (ISS) in Rome, where she is affiliated with the Na
• Anna PoleggiAnna Poleggi is a permanent research scientist in the Department of Neuroscience of the Istituto Superiore di Sanita (ISS), Rome, and is listed as the
• Antonio MasoneAntonio Masone is a neuroscientist trained at the Mario Negri Institute in Milan, where he did a PhD from 2018 to 2023 and worked in the Laboratory of
• Barry M. BradfordBarry M. Bradford is a prion disease neuropathologist at The Roslin Institute and Royal (Dick) School of Veterinary Studies, University of Edinburgh.
• Ben DevermanBroad Institute scientist whose lab engineered AAV capsids for brain-wide gene delivery, enabling the CHARM epigenetic editor and co-authoring the CHARM and base editing papers.
• Bradley R. GrovemanBradley R. Groveman is a prion researcher at NIAID Rocky Mountain Laboratories (RML) in Hamilton, Montana, listed in 2024 to 2026 papers under the Lab
• Brian ApplebyDirector of the National Prion Disease Pathology Surveillance Center at Case Western Reserve University, neurologist and principal investigator of the
• Byron W. CaugheyByron Caughey (1957 or 1958 to 15 February 2026) spent his whole career at the NIAID Rocky Mountain Laboratories in Montana and led the group that bui
• Candace MathiasonCandace K. Mathiason is a Professor of Pathobiology in the Department of Microbiology, Immunology and Pathology at Colorado State University, where sh
• Catriona A. McLeanCatriona A. McLean AO is Professor and Head of Anatomical Pathology at Alfred Health in Melbourne, Director and diagnostic neuropathologist of the Vic
• Christiane StehmannDr Christiane Stehmann is a co-director of the Australian National Creutzfeldt-Jakob Disease Registry (ANCJDR) at The Florey Institute of Neuroscience
• Christina D. OrruNIAID scientist at Rocky Mountain Laboratories who first-authored the nasal brushing RT-QuIC test and led RT-QuIC training for outside laboratories.
• Christina J. SigurdsonVeterinary pathologist and prion researcher, Professor of Pathology at UC San Diego and at UC Davis and co-director of the joint UC San Diego and UC D
• Claudio SotoClaudio Soto is a biochemist who works on the misfolding and brain accumulation of proteins, and who invented protein misfolding cyclic amplification
• Colin L. MastersColin L. Masters is an Australian neuropathologist, laureate professor at the University of Melbourne and based at The Florey Institute of Neuroscienc
• Daniela MerloDaniela Merlo is a neurobiologist at the Istituto Superiore di Sanita (ISS) in Rome and, since 1 August 2025, Director of the ISS Department of Neuros
• David R. LiuCore institute member of the Broad Institute and senior author of the 2025 Nature Medicine paper showing that in vivo base editing of PRNP extends lif
• David WestawayDavid Westaway is a prion biologist who directed the University of Alberta Centre for Prions and Protein Folding Diseases from 2006 until about 2022 a
• Davide CaredioDavide Caredio is a neuroscientist who trained in the Aguzzi lab at the Institute of Neuropathology, University Hospital Zurich, where he did his PhD
• Deb CabinDeborah E. (Deb) Cabin is a mouse geneticist in Great Falls, Montana, at the institute formerly called McLaughlin Research Institute and renamed in 20
• Dorina TipleDorina Tiple is a neurologist listed as one of two consultant neurologists on the staff of the National Registry of Creutzfeldt-Jakob Disease at the I
• Edgar ChanA consultant clinical neuropsychologist in London whose main body of work is Queen Square clinical neuropsychology, in particular frontal lobe cogniti
• Edwin N. NeumannEdwin N. Neumann is the first author of the 2024 Science paper that introduced CHARM, a compact AAV-deliverable epigenetic editor that silenced the pr
• Ellen GelpiEllen Gelpi (also listed as Ellen Gelpi-Mantius) is a neuropathologist and Privatdozentin at the Medical University of Vienna, where she leads a resea
• Emiliano BiasiniEmiliano Biasini is a prion biologist who heads the Dulbecco Telethon Laboratory of Prions and Amyloids in the CIBIO department of the University of T
• Eric Vallabh MinikelCodirector (with Sonia Vallabh) of the Broad Prion Therapeutic Science program, protocol principal investigator of PRiSM and the lead voice on CSF PrP
• Fabio ModaFabio Moda is a prion biologist at the Carlo Besta neurological institute in Milan, where the laboratory medicine service runs a biosafety level 3 lab
• Fabrizio TagliaviniIn the 1990s he was first or senior author on the papers that identified the prion protein fragment making up the amyloid of Gerstmann-Straussler-Sche
• E. Fiona HoustonE. Fiona Houston is a veterinary scientist at The Roslin Institute and Royal (Dick) School of Veterinary Studies, University of Edinburgh, where the u
• Franc LlorensFranc Llorens was a biochemist and CIBERNED senior researcher who worked on blood and CSF biomarkers for prion disease and other rapidly progressive d
• Gabor G. KovacsGabor G. Kovacs is a neuropathologist who ran two national prion disease reference centres in central Europe and has worked in Toronto since 2019.
• Genevieve M. KlugGenevieve M. Klug is a long-standing researcher with the Australian National Creutzfeldt-Jakob Disease Registry (ANCJDR) in Melbourne.
• Gerold Schmitt-Ulms
• Gianluigi ForloniGianluigi Forloni is head of the Neuroscience Department at the Istituto di Ricerche Farmacologiche Mario Negri IRCCS in Milan, a department that incl
• Giovanna MallucciGiovanna Mallucci is a clinical neuroscientist and neurologist who has been a founding Principal Investigator at Altos Labs, Cambridge Institute of Science, since 2022.
• Gregory J. RaymondGregory J. Raymond is a long-serving prion research scientist at the NIAID Rocky Mountain Laboratories in Hamilton, Montana, who worked for about thre
• Holly KordasiewiczHolly Kordasiewicz is the Ionis executive who has overseen the company's neurology program, including the PrP-lowering ASO ION717 for prion disease.
• Inga ZerrInga Zerr is professor of neurodegenerative diseases at the University Medical Center Goettingen, head of its prion research group and of the German N
• Isidro FerrerSpanish neuropathologist (Isidre Ferrer Abizanda in Catalan) at the University of Barcelona and Bellvitge University Hospital, L'Hospitalet de Llobregat.
• Jessie DavisJessie Davis is a bench scientist on the prion base editing effort at the Broad Institute of MIT and Harvard.
• Joaquin CastillaLeads the Prion Research Lab at CIC bioGUNE (Spain) as Ikerbasque Research Professor and presides the Spanish Foundation for Prion Diseases; holds a 2
• John CollingeJohn Collinge is the founding director of the MRC Prion Unit at UCL, the UCL Institute of Prion Diseases and the UK National Prion Clinic, and a leadi
• Jonathan S. WeissmanWhitehead Institute scientist and co-corresponding author (with Sonia Vallabh) of the 2024 Science paper on CHARM, the compact epigenetic editor that
• Matthias SchmitzResearcher in the Zerr group at Goettingen who holds a CJD Foundation grant on validating tear fluid RT-QuIC and co-developed the full-length E200K substrate.
• Maurizio PocchiariMaurizio Pocchiari is a neurologist at the Istituto Superiore di Sanita (ISS) in Rome who has run Italian CJD surveillance since the National CJD Regi
• Michael D. GeschwindMichael Geschwind is a neurologist at UCSF who leads the Memory and Aging Center's clinical research program in rapidly progressive dementia and is a
• Miguel CaleroMiguel Calero (Miguel Calero Lara) is a research professor at the Instituto de Salud Carlos III (ISCIII) in Madrid and a CIBERNED investigator who has
• Neil A. MabbottNeil A. He has worked on prion disease since 1995, when he joined the Neuropathogenesis Unit of the Institute for Animal Health, first on how prions e
• Nina OberbeckSenior director of translational sciences at Gate Bioscience and lead of its prion program; presented the work at Prion 2024 and the 2023 national CJD conference.
• Nir GiladiNir Giladi was a professor of neurology at Tel Aviv University and a senior leader at Tel Aviv Sourasky (Ichilov) Medical Center, where he chaired the
• Niraj KumarNiraj Kumar is a neurologist with movement disorder training who founded and headed the Department of Neurology at AIIMS Rishikesh (Uttarakhand) from
• Noa Bregman
• Peter HermannStudy physician at the German National Reference Center for TSE in Goettingen; first author of papers on CJD surveillance in Germany and co-author of
• Piero ParchiAssociate professor of neurology at the University of Bologna and director of the neuropathology of neurodegenerative diseases program at the IRCCS In
• Qingzhong KongAssociate director of the NPDPSC and tenured associate professor of pathology and neurology at Case Western Reserve University; leads the ADAM8 and sh
• Richard KnightEmeritus Professor of Clinical Neurology at the University of Edinburgh and a long-serving neurologist of the UK National CJD Research and Surveillanc
• Roberto ChiesaRoberto Chiesa is a neuroscientist who heads the Laboratory of Prion Neurobiology in the Department of Neuroscience at the Istituto di Ricerche Farmac
• Rodrigo MoralesRodrigo F. Morales, PhD, is Professor of Neurodegenerative Diseases Research in the Department of Neurology at McGovern Medical School, UTHealth Houst
• Sabina CapellariAssociate Professor of Neurology (DIBINEM, University of Bologna) and consultant neurologist at the IRCCS Institute of Neurological Sciences of Bologn
• Simon MeadConsultant neurologist, Clinical Lead of the UK National Prion Clinic and Deputy Director of the MRC Prion Unit at UCL; leads the genetics and epigene
• Simone BaiardiNeurologist and Fixed-term Researcher in Tenure Track in Neurology at the University of Bologna Department of Biomedical and Neuromotor Sciences, work
• S. K. ShankarSusarla Krishna Shankar was a NIMHANS neuropathologist, Head of the Department of Neuropathology from 1998 to 2012, founder of the NIMHANS brain bank
• Sonia M. VallabhCodirector (with Eric Minikel) of the Broad Institute Prion Therapeutic Science program and co-founder of Prion Alliance, who co-leads PrP-lowering dr
• Stanley B. PrusinerNeurologist and biochemist at the University of California San Francisco who discovered prions and received the 1997 Nobel Prize.
• Stephane HaikStephane Haik is a neurologist (MD, PhD) who co-leads the ALZHEIMER-PRIONS team at the Paris Brain Institute and holds a CNRS Director of Research title.
• Steven E. ArnoldNeurologist at Massachusetts General Hospital and principal investigator of OBSERVE, the longitudinal cohort of people at risk for genetic prion disea
• Steven J. CollinsProfessor Steven J. Collins is a neurologist and prion researcher who directs the Australian National CJD Registry (ANCJDR) at The Florey and the Univ
• Suvankar PalProfessor of Neurodegenerative Disorders and Clinical Trials and Honorary Consultant Neurologist at the University of Edinburgh, Deputy Director (Neur
• Suzette PriolaSenior Investigator and Chief of the TSE/Prion Molecular Biology Section at NIAID Rocky Mountain Laboratories in Hamilton, Montana, at RML since 1991
• Tessa M. BertozziShe has since left academia: the Weissman lab lists her as an alumna now at Conception Biosciences, and Conception's own team page (October 2026) list